Most parents think they are safe with their children, believe they have rights and make the best decisions for their children…and also trust the medical field in helping to make decisions that are for the best of their children and families…BUT, like with all rights being crushed to the ground these days, hospitals have joined the fray in flexing powers they believe they have over and above the family…and this is a case example – ONE OF MANY – that shows YOU that each and every parent better take issue with this case, campaign for Justina and her family OR YOU WILL SUFFER THE SAME ALIENATION FROM YOUR OWN CHILD!
According to TheBlaze.Com, For more than a year, Justina Pelletier has been the center of a battle between her parents, the Massachusetts Department of Children and Families and Boston Children’s Hospital, and two controversial medical diagnoses. After her family began speaking out last November about their fight against these major institutions in court, they were placed under a gag order.
When the Pelletiers brought Justina to a Connecticut hospital in February 2013, she was suffering from the flu. As her sister Jessica explained it, people with mitochondrial disease are affected by illnesses, like the flu, in a more pronounced way.
Jessica, 25, is the second-oldest of the Pelletiers’ daughters and has mitochondrial disease herself. The disease can manifest itself in various ways, but at its root, results from a defect in the mitochondria, an organelle inside cells that produces energy. Jessica’s diagnosis was established medically through analysis of the cells of her muscle tissue.
In Justina’s case, a doctor evaluated her symptoms, considered her family history — mitochondrial disease can be inherited — and gave her a clinical diagnosis of the disorder. Under the care of physicians at Tufts Medical Center, Justina was treated for mitochondrial disease. But when she got the flu and her parents were told she should be transferred to Boston Children’s Hospital, things changed.
As Lou Pelletier explained it, Justina was supposed to be transferred in an ambulance, for insurance purposes, to the Boston hospital, and brought through the emergency room but seen by a gastrointestinal doctor. Instead, upon arriving, he said she was stopped and evaluated by a neurologist, who, Pelletier said, didn’t look at her medical history or contact her other doctors. This doctor, according to Justina’s father, said he thought the illness was all in Justina’s head — that it was somatoform disorder.
The physicians at Boston Children’s Hospital disagreed with her diagnosis of mitochondrial disorder and wanted to take a different approach to her treatment. At first, Lou Pelletier said, “we were game to try a new approach.” But when the hospital laid out their plan to take Justina off all of her mitochondrial and pain medication, her parents balked.
That was Feb. 13, 2013. The next day — Valentine’s Day 2013 — Justina’s parents went to Boston Children’s Hospital with a couple of advocates intending to have her discharged and brought to Tufts. Instead, they were met with security guards and served a 51A, a report of alleged physical or emotional abuse. Lou said when he saw security showing up, he called 911, thinking that things were not about to go in their favor.
“I told them ‘my daughter is about to be kidnapped by Boston Children’s Hospital,’” he said.
The Pelletiers were accused of overmedicalizing their daughter. Lou Pelletier pointed out that he doesn’t see how having a congenital band removed, her tonsils taken out, procedures to help her have bowel movements — a reoccurring issue for Justina — and following doctor’s orders for prescriptions for mitochondrial disease can be considered overmedicalizing.
Justina was transferred to Boston Children’s Hospital’s Bader 5 psychiatric unit on April 9, 2013. There she was treated for somatoform disorder. According to a document from Boston Children’s given to the Pelletiers, Justina’s treatment included a “behavioral plan […] formulated with input from all relevant disciplines which will day schedule, feeding and functioning plans with a therapeutic approach.” Physical therapy was included as well.
Another measure on the “Guidelines for Care of Justina Pelletier” included that “no diagnostic tests and no new consultations are to be requested unless Justina develops a new or acute process as observed and assessed by the medical team.”
The Pelletier family isn’t necessarily alone in their experience with the hospital. After their case made national headlines, other families began speaking out about the hospital threatening to get DCF involved. Complaints that have been filed since against Bader 5 prompted the Massachusetts Department of Public Health to launch an investigation.
‘I WANT TO HAVE ALL MY GUNS BLAZING’
Lou Pelletier told TheBlaze he used to play “20 questions” on the phone to learn from Justina what was going on in the psych ward on the days they were scheduled to call. Justina also used to sneak little notes to her family in cards she wrote them.
Jessica Pelletier demonstrated how she would fold a flap in cards and write messages in small handwriting underneath. Lou Pelletier said if Justina got caught doing this “she would get tortured,” which he said the hospital called “behavioral modification.”
“That’s what Kim Jong Il’s doing in North Korea, behavior modification. … No, no, no, no. It’s torture,” he said.
The Pelletiers don’t get cards anymore. All they get from Justina now are 20 minutes on the phone every Tuesday, one-hour visits each Friday, and her bracelets, which show her preferences for the colors blue and green. Both Lou and Jessica Pelletier sported several of Justina’s beaded or artistically twisted rubber band bracelets on their wrists.
After several court dates, Justina was moved from Boston Children’s Hospital to another facility in Massachusetts. At the time, Lou Pelletier said “justice maybe prevailed.” But in the hearing following this decision two weeks later, things seemed more grim from the Pelletiers’ perspective. Lou Pelletier said it is not a medical facility. He said it’s a temporary place where she is being held until her treatment going forward can be agreed upon in court.
“Now we go back the 24th, a week from today, and I want to have all my guns blazing. We’re not going to make it much more,” Lou Pelletier said.
“Our family,” Jessica Pelletier said, “I don’t know how we survived this long.”
And they’re not just talking about the “heartbreak” of Justina. The yearlong fight to bring the decisions regarding her medical care back to her parents has taken a toll on the Pelletier family.
Financially, they’re trying to make ends meet with expensive legal fees. The Pelletiers have a PayPal account connected to www.freejustina.com for those wishing to donate to her family’s cause.
If the decisions regarding Justina’s care are returned to her parents, Lou thinks she needs total rehabilitation, saying that he worries her current state could be “irreversible.”
“She needs physical therapy. She needs to be back on the vitamin cocktail. She needs to be treated for the goddamn diagnosis she had from the beginning,” Lou said. ”I need to save my daughter. If we don’t do something, she is going to die.”
‘SHE NEEDS TO BE THIS COUNTRY’S HERO’
On the Glenn Beck Program Monday night, Lou Pelletier said he and his wife, Linda, continue telling Justina to hang in there. “I never thought of all my daughters that she would be my hero,” Lou said on TheBlaze TV, telling Beck that he has been amazed by his daughter’s strength, even as he has seen her condition deteriorate. “She needs to be this country’s hero.”
This WILL happen to ALL PARENTS as a result of hospitals taking the lead from government to flex their power over that of parents and loved ones…especially under the new OBAMACARE policies…Unless each of you reading takes the moment to stop this – protest so all hospitals will get the message!
Sign the petition to help free Justina and empower her family!
And donate to help the fight to get Justina back with her family at www.FreeJustina.Com
(Article material reprinted from TheBlaze.Com and other news sources under emergency public awareness campaign justification}